⏱ Read time: About 4 minutes

Friends and neighbors,

Across Texas, neurological care is slowly catching up to the needs of people living with rare diseases. I know it seems like molasses in winter when you NEED answers.
Five years ago, “tele-neurology” sounded futuristic. Today, it’s saving lives, fuel, and time.

The last visit with my neurologist was 6 hours of long Texas highway AND Dallas Texas traffic. My next visit? Can you say “tele-neurology”? I will be at home, No long drive, no waiting room fatigue, no racing the clock. It reminded me that progress doesn’t always come from a new drug — sometimes it’s from a new way to connect.

This issue focuses on how Texans are using technology to close the distance: home infusions, virtual diagnostics, and AI-assisted triage that’s shortening the wait for care.

We’re also featuring real patient voices from South Texas — proof that when access improves, outcomes do too.

✅ New tele-neurology clinics expanding rare-disease care statewide
✅ Home-based infusions and monitoring covered by more insurers
✅ AI tools speeding up diagnosis of CIDP and NMOSD
✅ Mental-health check-ins for fatigue and anxiety now virtual
✅ Texas initiatives linking rural patients to major research centers

The pandemic years created an unexpected breakthrough: Texas hospitals discovered that rare-disease patients could be seen and stabilized virtually. Now, the model is permanent.

📊 By the numbers: The Texas Health Data Consortium reports a 32 % increase in tele-neurology visits between 2023 and 2025, mostly in rural ZIP codes.
Doctors are also reporting fewer relapses in CIDP and NMOSD when patients attend monthly virtual reviews.

🎯 Your Action:
Ask your neurologist if their practice supports video follow-ups or home monitoring for fatigue, gait, or medication adjustments.
If not, request a referral to one of the state’s expanding tele-neurology programs.

Texas Tele-Neurology Access Points:

1️⃣ Home Infusion Growth
Texas Specialty Pharmacy reports a 45 % increase in home-based IVIg setups in 2025, particularly across rural counties.
Patients describe shorter recovery times and fewer missed doses.

2️⃣ Smart Symptom Tracking
The University of Texas Rio Grande Valley Neurology Department is testing an AI tool that screens neuropathy symptoms before appointments, prioritizing high-risk cases and reducing waitlists by 20 %.

3️⃣ Clinical Trial Access
Texas Children’s Hospital and Argenx have rolled out bilingual digital recruitment for autoimmune neurology studies — finally including Hispanic and rural populations often overlooked in enrollment.

4️⃣ Mental Health Coverage
As of mid-2025, Medicare and most private insurers cover virtual psychotherapy sessions for chronic-illness-related anxiety and fatigue management.

Telemedicine doesn’t solve every barrier, but it’s turning “someday” care into “today” care for thousands of Texans.

Link: https://med.uth.edu/neurology/telemedicine/

Direct Contact for Inquiries:Email: [email protected]

Texas Institute for Neurological Disorders - Teleneurology
Link: https://www.texasinstituteforneurologicaldisorders.com/teleneurology/
Phone: (844) 754-8463
Email: [email protected]

💻 Fall 2025 — UT Health San Antonio Tele-Neuro Access Webinar (Details TBD)
A planned virtual session highlighting telemedicine integration across South Texas neurology clinics.
Date to be announced — watch events.uthscsa.edu for registration.

🧬 January 2026 — Texas Rare Neuro Clinical Trials Initiative Launch (anticipated)
Texas academic and hospital partners are preparing expanded clinical-trial access for rare neuro-autoimmune patients statewide.
Details pending FDA and institutional announcements.

Tele-Neurology: Virtual neurology visits via secure video.
IVIg: Intravenous immunoglobulin, a mainstay therapy for CIDP and related autoimmune neuropathies.
NMOSD: Neuromyelitis Optica Spectrum Disorder, a rare autoimmune attack on the optic nerve and spinal cord.
Remote Monitoring: Use of digital tools to track symptoms, mobility, or medication adherence at home.

Need a laugh today?
Check out our sister newsletter 🌀 Rarely Serious, where we find humor and heart in rare-life moments.

Texas NeuroRare invites collaboration with Texas health systems, patient organizations, and sponsors who share our mission:
connecting rare neurological patients to faster diagnosis, better access, and hope.
For partnership details, contact: [your email]

© 2025 Texas NeuroRare | Bi-Weekly Publication | Central Texas Edition
In collaboration with Rarely Serious — the lighter side of rare neurology

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