Dear Friend,

Welcome to Texas NeuroRare – a sister group to Cidpedia.net and community built for those touched by rare neurological conditions in the great state of Texas. 🧠✨

You're receiving this invitation because we believe you'd find value in connecting with our growing network of patients, caregivers, clinicians, researchers, and advocates who share a common mission: advancing awareness, research, and support for rare neurological diseases.

🎯 What We're Building Together:

• A trusted source for the latest research updates and clinical trial opportunities • Patient and caregiver stories that inspire and educate • Direct connections to Texas-based specialists and resources • Advocacy opportunities to make your voice heard • Community support when you need it most

🌟 PREMIERE: A Sneak Peek from Our Inaugural Issue

To give you a taste of what's coming, here's an exclusive preview from our first newsletter:

"Breaking Ground in Texas: The Rise of Precision Medicine for Rare Neurological Conditions"

Texas is emerging as a leader in personalized treatment approaches for rare neurological diseases. At Baylor College of Medicine's Neurogenetics Clinic and UT Southwestern's Rare Disease Center, researchers are pioneering genetic therapies that were unimaginable just five years ago.

A leading neurologist specializing in rare movement disorders at Houston Methodist, recently shared this: 'We're seeing patients with conditions like Friedreich's ataxia and spinal muscular atrophy who now have treatment options that can slow progression and improve quality of life. The key is early diagnosis and connecting patients to the right resources.'

This is just one of the many stories you'll find in our full inaugural issue, featuring: ✓ Interview with leading Texas rare disease researchers ✓ Patient spotlight: A Houston family's journey with mitochondrial disease ✓ Clinical trial opportunities currently enrolling in Texas ✓ Resource directory for rare disease support groups across the state

📰 What to Expect: Our newsletter arrives with carefully curated content that matters to our community. No spam, no fluff – just valuable information that may help make a difference in your journey with rare neurology.

🏥 Texas-Focused, Globally Connected: While we're proud Texans, we collaborate with rare disease organizations nationwide to bring you the most comprehensive resources available.

📧 Stay Connected: Reply to this email anytime – we read every message and love hearing from our community members.

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Same editors new formats,join us!

Richard and Margaret

Questions or comments [email protected] our trusted email.